ALS ADVOCACY

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FEDERAL ALS REGISTRY

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We are proud to announce the National ALS Registry, a historic project to advance Lou Gehrig's disease research. Every single person with ALS across the country should begin enrolling in the registry today. Go to www.cdc.gov/als, sign up and join tens of thousands of people with ALS nationwide in adding your name to the fight for a treatment and cure.

 

Full implementation of the Registry is the culmination of more than six years of advocacy by The ALS Association and advocates across the country who worked with Congress to introduce and enact The ALS Registry Act and secure the funding necessary to move this critical research project forward.

 

Because of your advocacy, every person with ALS will be counted in the fight against Lou Gehrig’s Disease. Because of your advocacy, the federal government is launching what may become the single largest ALS research project ever created. And because of your advocacy, we are beginning a new era in which the Registry will capture an unprecedented amount of information about the disease that could lead us to discover the cause, treatment and cure for ALS!

 

However, we need every person with ALS in the United States to enroll in the Registry! Therefore, if you are a person with ALS, go to www.cdc.gov/als and enroll today. We also encourage you to share news about the Registry with your support group, friends, email list and everyone else you know with ALS or who may know someone with ALS. Spread the word!

 

The ALS Association has created a special section of our website dedicated specifically to the National ALS Registry. The site, www.registry.alsa.org, includes instructions on how to enroll, answers to frequently asked questions, brochures and flyers that you can print and share, and much more. People with ALS also can access the Registry directly from the site.

 

The ALS Association would like to thank every person with ALS and every advocate across the country for helping to make the Registry possible! You truly are making a difference in the fight for a treatment and cure.

 

If you have any questions about the ALS Registry or would like assistance enrolling, please contact us at advocacy@alsa-national.org

 

Thank you!

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