For a child or teen, processing the fact that a parent or grandparent has been diagnosed with ALS can be challenging enough. Being charged with the responsibility of being a caregiver for that family member can be harder still.
That’s why Melinda Kavanaugh Ph.D., Assistant Professor of Social Welfare at the University of Wisconsin—Milwaukee, initiated and led a nationwide study to learn more about child and teen caregivers of ALS patients. Her findings have led to the creation of support groups and other resources for a special demographic of caregivers that until now were largely overlooked.
The goal is twofold: to provide these adolescents with the resources and understanding they need to function within their role as caregivers, and to also improve the quality of life within the ALS household as a whole.
It’s also another reason to consider a donation to the ALS Wisconsin Chapter on Giving Tuesday (December 1st), because you’ll be helping ease the toll ALS takes on families throughout Wisconsin.